The following contact information and national guidelines for neuroendocrine tumors are provided to help you reach a better understanding of this complex disease. The listings below are nationally based organizations.

Government Agencies and Medical Societies

Patients Advocacy Groups

(NANETS) Neuroendocrine Tumor Guidelines

  • NANETS Consensus Guidelines for the Diagnosis of Neuroendocrine Tumor
  • NANETS Treatment Guidelines: Well-differentiated Neuroendocrine Tumor of the Jejunum, Lleum, Appendix and Cecum
  • NANETS Treatment Guidelines: Pheochromocytoma, Paraganglioma, and Medullary Thyroid Cancer
  • NANETS Treatment guidelines: Well-differentiated Neuroendocrine Tumors of the Thorax (includes lung and yhymus)
  • NANETS Treatment Guidelines: Well-differentiated NETs of the Distal Colon and Rectum
  • The NANETS Consensus Guidelines for the Diagnosis and Management of Poorly Differentiated (High-Grade) Extrapulmonary Neuroendocrine Carcinomas
  • The Pathologic Classification of Neuroendocrine Tumors: A Review of Nomenclature, Grading, and Staging Systems
  • NANETS Treatment Guidelines: Well-differentiated Neuroendocrine Tumors of The Stomach and Pancreas